Comments on: The Story of New Feet & Tecfidera Update

By: Meg

Meg — Wed, 17 Jul 2013 17:23:42 +0000

In reply to marymayi. :)Thanks for sharing Mary! Glad to know others are ordering up functional body parts at the store:)

By: marymayi

marymayi — Wed, 17 Jul 2013 14:46:03 +0000

People and kids say the sweetest things. Will ask if I need anything, I’ll say Oh yes! If you don’t mind a new set of legs and a left arm, would be great! It’s become kind of fun, it lighten things up a bit, with some of my friends and family, I’ll ask them about it,Oh sorry! They were fresh out! Mary

By: Meg

Meg — Sat, 29 Jun 2013 16:21:01 +0000

In reply to Mette.

🙂 Hi Mette, wondered where you were! Yes I remember reading your post about little man having a play date over and his explaining, I could relate because when I worked at the school and had MY pink can and my Segway to get around, the young kindergartner’s that knew me because I worked in their class would frequently explain to the older students “why” I used those things, and their words were always so wonderful to hear, honest and to the point. I found myself using their explanations out in the “real” world just because they seemed easier and more truthful!
Hope u r well!

By: Mette

Mette — Sat, 29 Jun 2013 06:31:48 +0000

Children are amazing:) We have always been open about MS with our children. Their little friends happily ask about my stick and me walking badly. The little man (5) explain to his friends that my legs doesn’t listen to my brain and thats why I walk with a stick. Logic isn’t it?:) Glad medicin’s working.

http://oddparent.blogspot.dk/

By: Meg

Meg — Fri, 28 Jun 2013 23:51:18 +0000

In reply to Jodi. ugh, so sorry to hear that J....maybe one of the other two that just came out, horrible with remembering the random names but know that Shawn put them down in his phone along with pluses and minuses of each if you want I can send them?

By: Jodi

Jodi — Fri, 28 Jun 2013 23:27:49 +0000

So glad that you continue to do well on Tecfidera. I restarted yesterday and got sick. Haven’t taken it since. Thinking I’m done. Not sure what’s next!