Comments on: Living with Multiple Sclerosis In 2017: What the Hell Do I Do Now? /living-multiple-sclerosis-2017-hell-now/ ******************************* BBH - BOOBS BOOTS & HAIR **************************** Inappropriate MMJ Momma - Living With Multiple Sclerosis and Finding The Reasons to Laugh and Smile Thu, 16 Mar 2017 02:48:02 +0000 hourly 1 https://wordpress.org/?v=6.7.1 By: Meg /living-multiple-sclerosis-2017-hell-now/#comment-136900 Thu, 16 Mar 2017 02:48:02 +0000 /?p=2500#comment-136900 In reply to Jessica.

Thanks for stopping by Jessica and letting me know I am not the only one:)

Cheers!
Meg

]]> By: Jessica /living-multiple-sclerosis-2017-hell-now/#comment-136899 Wed, 15 Mar 2017 17:49:45 +0000 /?p=2500#comment-136899 Wow ! so many things I read are what I too deal with

]]> By: Meg /living-multiple-sclerosis-2017-hell-now/#comment-136809 Fri, 20 Jan 2017 20:02:11 +0000 /?p=2500#comment-136809 In reply to Jeanette.

Thanks so much for sharing your story, Jeanette!

Cheers
Mwg

]]> By: Jeanette /living-multiple-sclerosis-2017-hell-now/#comment-136808 Fri, 20 Jan 2017 19:57:39 +0000 /?p=2500#comment-136808 Had my first MS symptoms in grade school. Doctor told me I was nuts! The sun burn effect, loss of feeling in hands..you know the routine. Moved out of state to attend college in Missouri. was a long 4 and a half years to get my bachelor’s degree in Computer Science. Met a guy my junior year there. We got married the day after I graduated.

Our first year together landed in the emergency room because the room would not stop spinning. (Had not had any alcohol in my system) Basically all they gave me was an expensive form of Dramamine. They sent me to my regular doctor to find out the cause. Started visiting a chiropractor to help with my back aches. After about 2 years visiting him on a regular basis, he sent me for my first M.R.I. The results showed I either had Spinal Cancer or M.S. Wish it had been the cancer! Would have died by now! My husband and I have been together now over 20 years and many different states of the mid west and 7 glorious years in Colorado. Miss that state (great neighbors).

First drug I was put on by a neurologist was Avonex. My body developed a tolerance to it and he had to try a different drug! Have been on Rebif, And a whole slew of others that I forget.

Am permanently in a manual wheelchair now. When we first relocated to Minnesota, a neurologist put me on Cytoxin (the name having the word “toxin” in it should have sent off warning bells!) it made me sicker than a dog. Vomited so much on that drug I lost way too much weight. So I stopped using that neurologist. Started seeing my current neurologist in 2010. He put me on Tysarbi. Worked great! Only side effect I had was constant itching. Have been itching since! After about 2013 the effects of the drug started not lasting the full 28 days between infusions. Now I am lucky to retain my coordination for a week after my infusion.

You are very right, there are no guarantees what tomorrow will be like with M.S.!

]]> By: Meg /living-multiple-sclerosis-2017-hell-now/#comment-136802 Tue, 10 Jan 2017 21:08:52 +0000 /?p=2500#comment-136802 In reply to Genevieve.

Genevieve,

Thanks for taking the time to read and share! And will absolutely WILL hold on to the future and look forward to new doors. Just don’t know what they will be:) I have NEVER been one to be patient:)

Cheers,
Meg (aka BBH)

]]> By: Genevieve /living-multiple-sclerosis-2017-hell-now/#comment-136801 Tue, 10 Jan 2017 20:54:50 +0000 /?p=2500#comment-136801 Appreciate your candid sharing. Last year I had to leave my position as a registered nurse as the physical demands were becoming incompatible with my abilities. For me 2017 holds a retraining into the more administrative side of healthcare. I will not let MS take anything without a fight. Hold on to the future and new doors will open for you.

]]> By: Meg /living-multiple-sclerosis-2017-hell-now/#comment-136800 Tue, 10 Jan 2017 18:52:40 +0000 /?p=2500#comment-136800 In reply to Sherry.

Always good to try something new. Just gotta figure WHAT that thing is going to be:)

]]> By: Sherry /living-multiple-sclerosis-2017-hell-now/#comment-136799 Tue, 10 Jan 2017 18:38:05 +0000 /?p=2500#comment-136799 ? Wow! I am so going through something similar. After mikes where old enough I had always worked out side of the home and within our family business as well. After my diagnosis of #MS. My like Life stopped! The life I had known. My friends stopped coming over. Life has not been the same. Now, after 6 years of knowing I have this deaseae and reminders daily that I can not do what I use too, I am left with now what ??? Slowly slipping into depression, deeper and deeper as I struggle to fight back.

I do know we can’t give up! It’s never too late to at lest try something. One day I hope things come together again.

]]> By: Meg /living-multiple-sclerosis-2017-hell-now/#comment-136798 Tue, 10 Jan 2017 16:12:49 +0000 /?p=2500#comment-136798 In reply to heatherhocking.

ALWAYS positive. Reasons to laugh and smile:). Thanks for sharing Heather!

]]> By: Meg /living-multiple-sclerosis-2017-hell-now/#comment-136797 Tue, 10 Jan 2017 16:11:15 +0000 /?p=2500#comment-136797 In reply to Carrie Power.

Hi Carrie! Thanks so much for taking the time to read and share your story. YES! Teaching is certainly something I have thought about. Figure I could always then go to just subbing after Shawn retires to have balance of work and play. . One of the things on my list of ideas:)

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