About Me

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This is me….

I am Meg….if you ask my ex-husband, I should be Megan, it makes it easier for him…but you would have to get a whole lot further into this blog to know why that is.  I am first and foremost a mom, but thanks to my “checking the wrong box,”  I am now defined by more than that.  I was diagnosed with MS (Multiple Sclerosis) in the end of 2007.  Since then…life  hasn’t been the same….it’s only gotten better.

To understand how I could possibly say that, you would need to know me.  I hope you will be able to say you do, once you have read about how I view all the ups and downs that life seems to deal each and every one of us.  There is the good, the bad and the ugly….and then there are the reasons to laugh and smile.

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My kids are my life, they are my GREATEST accomplishment.  To know that I have raised three truly amazing people, who are kind, and considerate, honest, and caring brings a warmth to my heart that I can not begin to explain.  They have been with me through this journey, from the very start, and although I know that finding out your parent is “sick” can be a scary and difficult thing to deal with, they have amazed me, time and time again, with their ability to show that they “have my back.” They realize that I am NOT like other moms (as Sam, my 15 year old puts it, I am frequently inappropriate….well actually I added the frequently, he would say always…)  But I am NOT like most other moms, and I suppose some of that has to do with the disease, but I think a larger part of that is because of my attitude and outlook towards what life deals me.  I choose to embrace the things that happen with humor and laughter, and that is because that is who I am, who I have always been (look for the good in things.)  BUT what I hadn’t realized is that by seeing me face this disease with the openness and acceptance that I have towards it, has made them better people.  They have so much more empathy towards others than I think your average teen/pre-teens would have.  They know what it is like to have their mom become disabled….to need to rely on a cane or a Segway to get to the park or into the grocery store, but rather than showing a lack of understanding or even being angry about this change, they too embraced it, giving names to each of these new “inanimate” objects in our lives.

First there was Pinky (my first cane, which was Pink because Piper insisted that if I HAD to have a cane, it at least had to be pink,) followed shortly after by MOJO, my Segway (compliments to my incredible parents.)  As time went on, canes became a common gift and I began to amass a collection that could rival my old flip-flop collection.  Bobo was blue, Commando was camouflage, there were a few flowery ones, a frumpy brown one, and even one that was given to me by the clerk at a gas station in middle of NO WHERE Washington (another story to share some other time.)

The simple fact is that through it all I was and will always be their “crazy” mom, spewing out inappropriate things, demanding that they hold up towels in the Safeway parking lot so that I can pee because I KNOW I am not going to make it into their restroom, meeting new people where ever I go, and just in general, having a good time and loving spending time with them.

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  SAM1

SAM (15)

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PIPER UMBRELLA2

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PIPER (13)

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MAXON (11)

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SPANKY- World’s GREATEST dog!

13 Replies to “About Me”

  1. I’m so glad I stumbled on your blog! Can’t wait to read more! I was diagnosed 4 years ago, I have 3 teenage girls! And I wish I lived in a state that allowed MMJ. I’m thinking of moving so I could try it out! Anyways just thought I’d say hi and thanks for your wit and fun and experience!

  2. Hi Meg! I just found your blog and I love it. You write beautifully, and your observations are spot-on. I’ve had MS for 25 years, became secondary progressive about 5 years ago. I also have 3 remarkable kids. My youngest was an infant when I was diagnosed and has now just graduated from college. Although they’ve missed some things because of my MS, I believe they are better people because of it, too. I think you’ll know what I mean when I say nobody washes a dish or sweeps a floor or carries anything when they’re around!

    1. Hi Cynde,

      Thanks so much for stopping by and for the kind words:)

      I completely get the “mommy mode” – it just kicks in. Discovered 13 (THIRTEEN!!!) glasses in one of the kid’s rooms yesterday – it took EVERY ounce of self-control to NOT pick them up and shlep them to the dishwasher. Instead, I took a picture of them and “shamed” him on Instagram:)
      I hope you will stick around for more of my babbling:)

      Meg

  3. Hi Meg, i too was Dx in 2007, 10 years on eh 😃 I have been trying to keep a positive mindset too, think that maybe the most important rules for this illness. Since Dx i have peddled across the USA San Diego to St Augustine with Biketheusforms.org. 3076 long miles! I re-visited Golf after 20 years and got my handicap down to single figures. Keep up the positive blog your words will and continue to inspire.
    Regards
    Mark Alston.

    #FeckMs #JustKeepPeddling.

    1. Hey Mark!

      Thanks so much for the kind words and keep kicking ass!! Keep in touch and let me know what you get up to:)

      Cheers!
      Meg

  4. I just stumbled upon your site and am overwhelmed. It’s like you are able to read my mind. I was diagnosed in 2009 by the neurosurgeon who did my anterior posterior spinal fusion- and confirmed by neurologists at a major medical center. I also have kidney disease- nephrotic syndrome and am two years out from breast cancer. My motto is try to laugh every day. Some days are tougher than others. The chronic unrelenting pain is what is the most difficult so I’m looking into the possibility of mmj. I love your positive attitude and look forward to reading more of your posts. Thank you for your candor.

  5. Hey Meg! My name is Lizzy. I too was diagnosed in ’07. Sad to say I can be real clueless about MS despite how long I’ve been aware of it.

    I still don’t know when I’m experiencing a relapse!

    I use a Rollator throughout the house and a wheelchair outside the house.

    I have 2 boys (17 and 13). Still married to my husband they are awesome care givers and step up big time.

    My MS therapy has changed over the years, I’m cuurently on Lemtrada. I did participate in the Phase II study of AntiLINGO (bad idea).

    Anyway, I just wanted to reach out and say hello. I’m getting curious about Marijuana and that is what brought me to your blog.

    Have a great day. Will probably reach out to you when I’m ready to ask about MMJ.

    Lizzy

    1. Hey Lizzy!
      Thanks for stopping by and nice to “meet” you! Have to say I laughed a bit at your confession “I can be real clueless about MS….Still son’t know when I am experiencing a relapse!”
      COMPLETELY get that – although I have been super lucky to NOT have any relapses lately when I do have one believe me, I am the LAST to know it. Usually get so far into it before seeking help that it takes much longer for the steroids to kick in and begin helping me climb back out.

      I look forward to keeping in touch…by all means hit me up with any questions you have. I certainly don’t claim to know it all but more than happy to try and lead you in the right direction:)

      Cheers!
      Meg

  6. I think it’s awesome that it works for you! My Drs say it’s not strong enough for the meds I take now methadone,oxycodone,tizanidine and gabapentin. Which I believe is what you were on?? The muscle spams are out of this world in my legs and I can only walk with a walker and I have lessons all done my spine my neck and head. New York just legizied medical mar and I would love to know what you take is it a pill vapor what I don’t know a lot about it except I have to pay out of pocket but at this point I don’t care! Thanks for listening to me
    Jean

    1. Hi Jean! Thanks so much for reading and sharing! I am not sure when you say “drs say it’s not strong enough for the meds I take…” does that mean they are saying it is not as strong and won’t work? I was on a number of the same medicines over the years but each one stopped being effective over time and increasing doses did not seem like a “pleasant” option for me. I have talked about the different strains and products that I have experimented with over the past few month but at the moment THIS POST and THIS STRAIN are what are working best for me.
      GREAT for you that NY is legalizing – I would suggesting perusing sites like Leafly.com to find info, but also, please don’t hesitate to ask questions here (or you are welcome to email me meglewellyn@gmail.com) I am far from knowing everything but can certainly try and point you in the right direction:)

      Cheers and good luck!

      Meg

    1. Hey Amber!
      Thanks for stopping by and sharing! One of the greatest things about blogging is meeting others that “GET IT.” Although we all have our own unique experiences and symptoms it is still great to know that there are other people out there on this crazy rollercoaster ride:)
      I hope you will stick around:)

      Cheers!
      Meg

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