MY TALENTED DAUGHTER….Perks of Social Media

  With all the different social media outlets around (Facebook, Instagram, Pintrest, Twitter, Vine…) kids today have an amazing resource to find ideas, stretch their imagination and try out new Continue reading

Guest Post!!!!! – Applying for SSI/SSDI

I AM SUPER EXCITED TO WELCOME Ram Meyyappan FROM: Social Security Disability Help VISIT: Applying for Social Security Disability Benefits with Multiple Sclerosis If you suffer from multiple sclerosis Continue reading

Biogen Tecfidera Update…Full of Shit

  We made it back and are slowly trying to play catch up; having been gone for three glorious weeks.  I will post pictures and share a few stories and Continue reading



In search of THE holiday photo

Every year I am in search of the “PERFECT” photo for my annual holiday card. Now… the fact that I haven’t actually SENT a holiday card out in the last Continue reading

A Bad Blogger


So I have been remiss, absent, negligent and just all around lame loser! I started this thing..:fell in love with EVERYTHING about blogging (except for the haters!). Then I just disappeared. Dropped off the face of the blogging world! But it is not as if I don’t think about it…IT (blogging) has become the overriding guilt in my life right now! I think about it every day and SWEAR that TODAY is the day that I will get back to it…and then the day ends and once again I have been a failure!
I realized yesterday that part of the issue is that I have developed a belief that each and every post needs to be monumental, earth shattering ….providing life lessons and insights to all that I face each day now that it IS different, cause I am no longer “normal.” But as Piper pointed out, I have never been “normal” and so I was thinking that MAYBE it would be okay to sometimes just have mindless posts, sharing my life as it is, no matter what (even if I didn’t shit in someone’s house.). I am on vacation….in my “heaven” that I have talked about. Shawn came with us for the first time and because his time here is so limited I am scrambling to show him as much as I can. We have been to the beach, went fishing on the jetty as the sun went down yesterday and today we are going kayaking and then clamming. I want to share all of this and so am posting this as a warning…for a bit I will NOT be giving deep and thoughtful insights into my life, but rather sharing all the things that make my heart warm and full my life with happiness and joy. I will go back to sharing the more important things like medications I have tried, being discriminated against for being disabled but not looking like it and other stories. But for now… It is vacation time….so enjoy the funny and the beautiful!